Systemic Lupus Erythematosus (SLE) or ‘lupus’ is a disease that causes inflammation in many different parts of the body. It can involve the skin (causing a rash), the joints (causing arthritis) or even internal organs such as the heart, lungs and nervous system.
The cause of lupus is unknown, but it involves the immune system, which for some reason, attacks the body’s own tissues. It is a chronic illness and sufferers can have periods where symptoms flare up or subside.
Symptoms
Chronic fatigue or tiredness
A butterfly shaped rash over the cheeks and nose
Sensitivity to sunlight or fluorescent lighting can cause a rash or symptoms to flare up
Mouth ulcers, which are usually painless
Joint problems – pain, stiffness, swelling
Other symptoms may be present if internal organs are affected.
Blood tests help to diagnose lupus and monitor its activity.
Treatment
There are a number of medications that can help in lupus. Common drugs include anti-inflammatory steroids and immunosuppressants.
Support and information
LUPUS UK, jointly with the UK Juvenile Systemic Lupus Erythematosus Study Group, have produced the booklet My Lupus – What I Need to Know – A Young Person’s Guide (at: http://www.lupusuk.org.uk/images/pdf/mylupuswhatineedtoknow.pdf)
They also have an informative NHS video about lupus in young people at http://www.lupusuk.org.uk/young-people.
